Thursday, 23 April 2015


We've been wanting to start a blog for quite some time now and finally, here we are! 

We thought we'd introduce ourselves properly on separate posts as although we have the same illness, our stories are extremely different. So, now we can tell you a bit about why we have started this blog. 

Arnold Chiari Malformation is a rare neurological condition which can affect your balance, memory, speech, nervous system, immune system and a whole load of other things that I'm sure we will talk about. Since being diagnosed we have found that most of the information online is based on the (limited) medical facts about the condition, which can be rather frustrating when you are trying to get your head around living what is essentially a new life for the rest of your life. Because it is so rare, most people don't have anyone to relate to or anyone who truly understands how you feel. In a strange way we are lucky to share the same illness but even so, our symptoms can differ as well as being at very different stages of the illness. Through sharing stories about living with CM1, the good, the bad and the ugly, we hope to inspire and encourage those who suffer as well as educating family and friends who may be having a tough time understanding it all. It is important to us that this blog reaches not only those with CM1 but anyone who may be struggling with other conditions such as chronic illnesses and depression. 

Through sharing our thoughts, opinions and stories with you we want to use this blog to show everyone that you really can live life to the full with a disability! 

It is going to be a bit odd writing a blog as a twosome but we are hoping that this will broaden the information and advice we have to offer.  We have never blogged before so here we go, nervous but excited...

Here are some (bad quality) pictures of us!  


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